Sajda’s CHD (Congenital Heart Defect) is known as Pulmonary Atresia with VSD.
Sajda's CHD (Congenital Heart Defect)
Her cardiologist explained to me today that this pic above is almost exactly what her heart is like.
Her pulmonary artery is blocked and no valve was formed…and in the complete repair they will unblock it and may or may not put a valve in…and they will repair the VSD (the big hole between the right and left ventricles).
We will find out in the next day or so whether they will go ahead with the complete repair now or will do what is called a BT Shunt…which acts a temporary fix till they do the complete repair.
With the shunt she would only be in the hospital like a week total if she is eating well…but with the full repair she would be here significantly longer (like a month). But with the shunt she would have to come back in 3-6 months for the full repair and it would mean she has to have two hospital stays.
Neither sounds good to me cause all I want to do is hold my baby and take her home.
But I know that the doctors are going to do what’s best for her, I still don’t have to like it though.
Eva, my heart is hurting for you. I know how much your babies mean to you and how hard it is going to be to go home w/o her. But just know in leaving her behind that she is where she needs to be and soon she will be home with you. We will keep praying for her and all the family.