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Archive for February, 2011

Sajda’s CHD (Congenital Heart Defect) is known as Pulmonary Atresia with VSD.

Sajda's CHD (Congenital Heart Defect)

Her cardiologist explained to me today that this pic above is almost exactly what her heart is like.

Her pulmonary artery is blocked and no valve was formed…and in the complete repair they will unblock it and may or may not put a valve in…and they will repair the VSD (the big hole between the right and left ventricles).

We will find out in the next day or so whether they will go ahead with the complete repair now or will do what is called a BT Shunt…which acts a temporary fix till they do the complete repair.

With the shunt she would  only be in the hospital like a week total if she is eating well…but with the full repair she would be here significantly longer (like a month).  But with the shunt she would have to come back in 3-6 months for the full repair and it would mean she has to have two hospital stays.

Neither sounds good to me cause all I want to do is hold my baby and take her home.

But I know that the doctors are going to do what’s best for her, I still don’t have to like it though.

 

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In those first few days…Sajda had many very special visitors

Bobu,  Salih and Bilal, older brothers.

Bobu, Salih and Bilal, older brothers.

Salih and Bilal, older brothers and Dadu

Salih and Bilal, older brothers and Dadu

Mu'min, older brother

Mu’min, older brother

Aunt Gullizar

Aunt Gullizar

Bobu wondering how things will go for you in the days to come.

Bobu wondering how things will go for you in the days to come.

Aunt Ajiza and Bobu

Aunt Ajiza and Bobu

Jiyan and Najia

Jiyan and Najia

Uncle Daniel

Uncle Daniel

Aunt Jemila

Aunt Jemila

Uncle Daniel

Uncle Daniel

Aunt Jemila and Dadu

Aunt Jemila and Dadu

Aunt Ajiza

Aunt Ajiza

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Oh Bittersweet February

February is a bittersweet month in our family….three generations of my family…my father, my brother, and my daughter came into this world in this month.  Both my daughter with her CHD found in utero and my brother a preemie who born at 27 weeks and only 2lbs 7 oz but soldiered on,  were little miracles from the start.  And  then there was my father who passed way too soon, also left us in this month 7 years ago.

Daddy, I wish you could see my little sunshine today…and know I am thinking of you today on your birthday, one day after the birth of my own daughter.

 

 

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Labor and Laughter go hand in hand for us.

We pretty much pass the time joking around till it gets to the “must only concentrate on this” part of labor.

The last two births, both times our nurses told us pretty much the same thing…”you guys are a fun couple, can you guys come back again?”

Turns out that a lot of people are rude and nasty with the nurses, and laughs, well those are hard to find.

Here are some funny moments from Sajda’s birth….hope you will take a moment and smile with us:

-Breathe, Nirgaz, Breathe

When the contractions were getting stronger, I was chanting more and more, and the nurses would remind me to breathe, but I just kept doing what I was doing and kindof ignored them because I needed to do it my way to deal with the pain.  So one of the times Meran chimes in and says “Breathe”…ok, man who made me pregnant and now is telling me how to labor…maybe not such a good time to tell me what to do since I am in pain with our baby and you don’ t have to experience the pain like I do…(really though he was looking out for me and copying what the nurses had said before to me)  So anyways I finish that contraction and then I give him a good stare and blurt out “If I faint, then tell me to breathe, otherwise I am doing good”…At this point both the nurse and Meran burst out laughing, as do I.

-My name is Eva, and I am not a Terrorist

A few weeks prior to having the baby, Meran and I one late night watched the movie “My name is Khan”.  In this film he’s on a mission to go tell the President that his name is Khan and he is not a terrorist.    So during labor one of my ways of dealing with the pain is to chant Dhikr (Arabic phrases of remembrance of God)….so I would say “Allah Akbar” for example and as the contraction intensified, usually so did my volume.  So at one point Meran jokes, “They are going to think you are a terrorist”…so I smile at the end of the contraction and say “Hello, my name is Eva, and I am not a Terrorist”  You had to be there, but it was funny!

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